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Old 05-14-2009, 09:25 PM
Juliedoll Juliedoll is offline
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Question Does hair grow back when your thyroid Leveled out?

Hi,
This is my first post. I have been slowly losing hair all over, a lot on my sides/temples. I thought is was my age. Just 40.
A random CBC showed my TSH was 5.6. Slightly high.
Went to my PCP (could only see a P.A.) and she said "You are Hypo-thyroid, take this (Generic Synthroid" you'll feel better and hair will grow back." She NEVER checked my Free T3 and Free T4, My hormone levels.... She wrote me for .088 mcg of Levothyroxine. I got a terrible Headache and racing heart, beet red face. I could deal with that. But then I started swelling up, Sinuses swelled up, wheezing. I went in the next day and she had to give me steroids to calm the allergic reaction. I get more tests done tomorrow. 5/16/09 (Free t3 and t4,FSH,re-do of the Tsh.)
I am losing my hair so bad, that my vacuum cleaner got clogged! All I want is to get leveled out on the proper medication and KNOW that my hair will grow back! I think about it all the time.
I'm a single Mom of 2 kids and I wonder who will date me if I lose all my hair! AND the side effects of Synthroid IS HAIR LOSS! You can't win! I'm going to ask for Armour or another combo T3/T4 med.
Does anyone know if you hair grows back once you are leveled out on the correct thyroid dose and your body had "normalized"?
I know there are way worse problems. I do. I AM being vain. But I am shedding EVERYWHERE! I hate to see it in the shower, in my brush. I wonder if you just ALWAYS have very very thin hair forever, no matter what you do?
I will take the medicine, because low thyroid makes you tired, bleed abnormally,cranky, puffy eyes and face and tons more.
Wonderful for dating, huh?
Anyone know if your hair grows back when you are leveled out?
I'm SO glad there is a support group though! It's a lonely thing to have!
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Old 05-14-2009, 10:55 PM
Georgene Georgene is offline
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Hi Juliedoll,
I am brand new to this forum and I must say your words are as if I were speaking them. Only difference is I am a newby to thyroid and just started Armor thyroid and am feeling fine. I just wonder if once my hormones and thyroid are on track, will my hair grow back. I had long curly thick hair and over the past year I have lost about half of it. The ends are so scragly that I am tempted to cut my hair short. I too am looking or answers here. I will post as I go through my journey, but would greatly appreciate if others who have lived this can give me/us some words of wisdom.
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Old 05-14-2009, 11:09 PM
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Hi Juliedoll -

I wanna start off by saying I'm so sorry you are going through this, I know how emotionally devastating this disorder is, and it pains me to that that everyday another woman will wake up to find she is now faced with something she never would have imagined could happen. Secondly, I just want you to know that I'm not a doctor, I am a 31 year old, 10 year hair loss veteran Everything I write is really just my opinion and what I have read and experienced over the years.

The short answer to your question is, Yes. Yes in some cases when a low thyroid is the precipitating factor to hair loss, rectifying it will restore balance and the hair loss can cease and hair can grow back. I think most doctors will tell you that. Here is a link to a "Thyroid Hair loss Success Story"

I said it was the short answer because thyroid and hair loss is a really tricky thing. As you found, one of the side effects of Synthroid can be hair loss. What the heck right? I also use 88mcg of Synthroid and have my own thyroid story which is quite long. But my hair loss started long before I took the Synthroid and I also know it wasn't related to a thyroid disorder. My hair loss and onset of androgenetic alopecia was actually triggered by the use of the birth control pill Loestrin FE, or as I like to call it, the "devil pill."

Clearly Synthroid does not agree with you, and I don't think that is uncommon at all. I think you need to consult with and educated specialist in thyroid issues. After feeling REALLY frustrated with my thyroid doctor I decided to have an over the phone consultation with Richard Shames, MD. I felt he was very caring and *listened* to what I was saying. When I made the appointment, I had to fill out some forms and fax it all back with my thyroid test results from my existing doctor, so he had all the info in front of him when we talked and I was able to address a lot of my concerns. So if you find you can't get any answers from the doctors you see, that may be something to consider. You do have to pay it out-of-pocket though. Here is his website:

http://www.thyroidpower.com/

Did you have other hormone related tests done, other than thyroid? Typically those come back "within normal range" but it is still a good idea to have them done, just to leave no stone unturned. Thyroid may be the cause of your hair loss but the possibility does exist that it could be caused by something else as well.

Here are some links that may be of help:

Synthroid and Hair Loss - Low Thyroid Medication Friend or Foe?

The Number 38, Why Does It Make Me So Happy?


Test Your Hormones When You Want - The Canary Club

Don't feel bad about feeling bad about your situation. You are not being vain, I mean, geez louise this is OUR HAIR. And while logically we can understand that hair loss isn't on the same level as many other disorders and illness, it doesn't really lessen the gravity and impact it *can* have on our lives... after living with it for so long, I like to rephrase that sentence to "gravity and impact we *ALLOW IT* to have on our lives" I feel I have *allowed* my hair loss to get the better of me. I hid through my entire 20's because I was sad and embarrassed and worried about the future. And for what? 20s came and went, time I'll never get back. In my situation my hair loss will continue to be progressive and it is up to me to set my mind straight and make a choice to not let it consume me... My next trick after that will be to walk on water

I have heard from several women who have had cancer and they said that having hair loss was *worse* than having cancer. I know, it's a bold statement and our mouths might drop open, but that is how serious it is to many of us. You are definitely not alone in this.

I saw the photos in your album and you are a beautiful woman with adorable children! I'm glad you found us.
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Old 09-28-2009, 12:38 AM
NoraBe NoraBe is offline
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just had to say that YES when your thyroid levels are normal your hair will grow back sometimes it takes 3 months but it WILL grow back...

when my thyroid was off it all grew back after the meds kicked in...

my hair is now falling out due to the "mini Pill" birth control was on it for a year & it's been falling out for 8 months trying to find answers
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Old 10-21-2009, 08:35 PM
AGWilson AGWilson is offline
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I have been told my thyroid function is marginal (in the normal range, but on the low end of it). I have high TPO, which means antibodies are attacking my thyroid and slowly destroying it (autoimmune disorder). Has anyone else here had a thyroid that is barely low, but the hair loss is extreme? I've lost 50% of my hair (diffuse thinning) in the last 6 months and have never had this problem before. I really don't know if this is the cause of my hair problem. I'm 40 and most likely starting perimenopause. I've seen a dermatologist, gynecologist, endocrinologist, and now a gastroenterologist (I have a lot of gut issues). I'm afraid of hormone therapy as my mom developed uterine cancer after taking estrogen and my aunt died of cancer after taking high-dose birth control back in the '60s. Any advice?
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Old 10-30-2009, 12:02 AM
ltbrn312 ltbrn312 is offline
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Hello. I am in the same boat; however, I have high anti-thyroglobulin antibodies, a thyroid ultrasound that confirmed Hashimoto's thyroiditis, a low marginal free T4 (0.85), & normal TSH (0.79). I have terrible symptoms of hair loss (50% loss) nail changes, various skin rashes, GI symptoms, fatigue, lethargy, etc.. I have been to many doctors who won't treat me because my TSH is "normal". I am so frustrated I e-mailed Oprah today with my story and frustration.

As far as advice, I would caution taking high dose vitamins. Taking high dose vitamins actually made my hair loss worse and I became B6 toxic and selenium toxic (the latter of which causes hair loss). I try to keep my supplements simple, I take Carlson's cod liver oil, liquid evening primrose oil (great supplement for hypothyroid), Vitamin D3 (my level was low normal), a probiotic & floramyces for my GI tract, hemp protein drink daily, I was on iron for a ferritin of 12 now I just take it during my period (my latest ferritin is 78). I have changed my diet drastically and eat 3 fresh fruits daily, raw vegetables daily, salad daily, lots of beans (kidney, black, etc.). I stopped all dairy and use hemp milk and rice milk (soy milk is not good for hypothyroid), I eat very little meat, and keep my diet as close to gluten free as possible. My hair is better than it was last year but not the same as it was before all my issues. My doctor said my thyroid will burn out eventually and until then she will not put me on thyroid meds. I will refuse synthroid and only take Armour or something similar. I don't know if this helps. I hope to find a doctor who will treat my symptoms and not my "numbers". If anyone knows of one in the Philadelphia region please post it. Thank you.
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Old 10-31-2009, 01:31 PM
kdwmw kdwmw is offline
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Hi Ladies,

I have Hashimoto's with borderline labs, as well. I was diagnosed when I went to my pcp about my hairloss. That was June '08. Luckily, my endo agreed to treat me per symptoms, not just #'s. I started right away w/ a half grain Amour daily and had significant improvement in all my symptoms except hair loss. About 8 mos. later, the extreme fatigue returned & my hair shedding got worse. They added .25 mcg levoxyl to the Armour and later upped that to .375 mcg. I've been on that dose since this summer. At first I got a huge shed, but it seems to be slowing down. I read somewhere that even the fluctuations within the "normal" labs causes the problems. It's the inconsistency, not the number. That makes sense to me. And with Hashi's, our thyroid can have stops & starts during its decline. So, long story short, it seems that until my thyroid actually poops out for good, there is no way to stabilize & hopefully grow my hair back. SOOO frustrating.
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Old 03-02-2010, 07:19 PM
brneyez brneyez is offline
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I hate to be a buzz-kill, but I experienced no new hair growth after my thyroid got leveled out. I've been taking levothyroxine for about 22 years. When I was younger, I had (maybe not) the thickest hair in the world, but pretty substantial. After I started taking the thyroid medication, I noticed hair loss right away, but since I was so young I was embarrased and didn't do anything about it. Now, here I am, 33 years old with just a fraction of the hair I had before. I haven't gone in to see a dermatologist because honestly I don't know if it would do any good. I went in to a Hair Restoration company, which was a total waste of time and money. They prey on women like us to make money, with no chance of new hair growth. I've also tried evening primrose oil, and some other pills/solutions that did not work either. I use a product called Toppik now, which conceals the thin areas. I love it, and would not go a day without it!
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Old 03-20-2011, 02:00 AM
sister1 sister1 is offline
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Juliedoll,

My experience is slightly different but I totally relate to your feelings and I do not feel you are vain. Who would choose to watch their hair go down the drain. I HATE IT!!!For me, it is the worst part of being hypo. I feel like my hair has always been my best feature...so to loose it at 45 is nothing short of devastating, not to mention beinhg single. It's hard to find a good doc who is able to look at your hormones and your thyroid because the two are so related to hair loss. I found that my female hair hormones as well as t3 and t4 (10 th percentile) were incredibly low but with normal TSH. The doc says it takes about 4 months to see any new growth. I think that once all the hormones are leveled it is possible to have regrowth. I am not a doc, but I have read that if any of these hormones are low there will be hair loss. For me it also the progestrone that is low (almost 0). So I have a double whammy. I am willing to purchase hair until I get this figured out. I have had my share of absolutely rude and inconsiderate docs who basically have related that they have more important things to do. I think that is the part that makes me feel most alone, until I read stories from others on this forum. Hang in there!!!!!!
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Old 09-27-2011, 03:43 PM
depressedashell depressedashell is offline
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Unhappy thyroid

Wow I am so happy to have found this site I thought I was going through this alone! My hair started to slowly fall out about 7 years ago and all my doctors told me it was from having a baby. I had thick long beautiful black hair and now its about 75% gone I have dealt with family and friends telling me I'm crazy because they cant see it, thats only because I know how to hide it! its to the point now that I cant really hide it anymore and I dont know what to do with myself I'm only 28! They said I have an underactive thyroid and Pcos and they gave me levothroxine and that crap gave me nasty migraines and made the hair loss so much worse now I'm terrified to try anything else! The endo I saw told me all my problems will go away when I lose weight well why did the hair loss start when I was at my skinniest! My primary care doctor put me on xanax everyone is just trying to make me shut up about it but they dont understand what its like to be a 28 year old single woman going bald! well at least I'm not alone but I cant take much more of this!
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What Is The Difference Between The Network and The Forum? The "Network" is a social network much like facebook and myspace, only it's just for women with hair loss. A forum is more of a bulletin board to post a question or story for others to read and to receive responses. It's easy and direct. I am hoping that the forum will be easy and inviting for those women who are uninterested or find it difficult to do the social network thing.




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