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  #1  
Old 11-23-2009, 09:49 PM
kso kso is offline
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Default Hair loss worst at temples/sides of head

Anybody else experiencing it worst in these areas? My hair is almost "normal" on top and at my part.

I went to a well renowned derm (after seeing 3 other useless MD's). Unfortunately, she was the same as the others. She looked at my head for approximately 90 seconds. No scalp biopsy, barely listened to my history, etc. She called it AGA and said the only thing I could do was Rogaine. She refuses to even entertain the idea of Spiro.

My loss started in July. Just when I think it can't get worse, it does. It is happening so fast. The pattern and timing is not consistent with AGA. Last week, I started excessivley shedding (which was not previously a problem). Because I must secretly love torture, I am going back to my PCP tomorrow. I am hoping that maybe he will refer me to an endocrinologist since my T3 and T4 were low. But, I don't have any other symptoms of hypothyroid besides being cold and having low ferritin. I'm also doing alternative medicine. And, reluctantly Rogaine.

Just wondering if anyone else has a similar story or advice to share.
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Old 11-26-2009, 11:14 AM
Wantresources Wantresources is offline
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Am new to this forum but my hair loss is the same as yours. Hair won't grow much either. I would love to keep in touch with you as our issues sound similar.
I am exploring prp.......see the posts.
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  #3  
Old 11-26-2009, 04:58 PM
kso kso is offline
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Hi Wantresources,

Well, to my surprise, the visit to my PCP was the most uselful yet. He actually *listened* to me, let me cry, and explain my rationale behind why I don't think I have AGA. He agreed that it is not the correct pattern and the fact that it is happening so quickly also does not fit that clinical diagnosis. We decided to try synthroid for a bit, 25mcg/day. Even though I have absolutely no other symptoms of hypo (besides the ones I mentioned above), he said that not everyone is the same and my thyroid may be fatigued. There is a lot of debate about the validity of TSH levels (mine was totally normal).

I have been doing extensive research on hair loss, reading lots of journal articles. I came across a recent one that said that Telogen Effluvium CAN present with noticeable thinning (not shedding) first and bitemporal recession. I also googled some pictures of TE, and this pattern looks EXACTLY like mine. Whereas, none of the pictures of AGA look like my hair. The problem is that mine might be chronic, since it began in July and I have not removed my trigger, i.e. stress. I have a great deal of stress in my life to begin with, but this hair loss literally tripled it to the point where it crippled me and has left me unable to cope effectively.

Soooo. My new game plan is to keep up the rogaine, take the synthroid, iron, multi-v, omegas, primrose oil, biotin. And to continue with acupuncture more aggressively. If my shedding doesn't stop, and I don't see growth in 2-3 more months, I will consider PRP.
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Old 11-27-2009, 06:38 AM
Dharma2 Dharma2 is offline
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Hi Wantresources,

Just wondering have you completely ruled out that it could be hormonal hair loss which is Female Pattern Baldness but can be treated? That's what I had for a long time and have found a successful treatment of spironolactone 200mg/day, Yasmin BCP non-stop 12 weeks then 4 days off, along with daily hair washing of Nizoral 2%. It's been a few months now and my hair looks good again. The texture is nice and I don't have any thinning areas. Also if you have a chance read "It's Your Hormones" by Dr. Redmond. It's an excellent resource for woman regardless of hair loss. Hope you find the resources you need.
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Old 11-28-2009, 01:50 AM
catherine1 catherine1 is offline
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The amount of synthroid you are taking is very low. I am not convinced it will help you much but at least you have room to move up. I actually thought 50mcg was the starting dose but I stand to be corrected.

I have similar experience to yours and would be interested to see how you fare out. I am now going on 1.5yrs of continual shedding which I guess would now be considered chronic telegon effluvium. I looked at the pictures and agree that my hair loss too does not present as AGA.

I am so glad to hear someone is listening to you and assessing based on your symptoms not on the lab work. I have what is considered sub-clinical hypothyroid with a TSH of 7.45 but, I was VERY symptomatic beyond just the hair loss.

I wish you only the best. Please report on your progress.
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Old 12-28-2009, 03:20 AM
31andlosingit 31andlosingit is offline
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I am so glad I found this forum. My hair loss started over 5 years ago and it is definately more significant at the temples. I noticed it began a few months after I briefly went on and then stopped taking BCP. I was experiencing shedding all over but noticed it most at the temples. I went to a dermo and he diagnosed me with TE and assured me it would grow back. I waited about a year (reading online that it can take up to 18 mo. for TE to stop) but my temples never improved and the shedding continued on and off. I then went to my PCP to get hormone tested and everything came back normal. I still insisted that she refer me to a specialist and I finally got to see the hair loss specialist at Johns Hopkins Hospital. You would think this person (a woman no less) would have the answer but she totally just blew me off, gave me a quick exam and said it was normal hair loss due to aging (I was only 30 at the time).

Shortly after that I got pregnant and I believed that perhaps my hair loss would stop because my pregnancy might help repair whatever I did to my hormones from BCP. And for a while, my hair loss really did decrease and I finally felt like this ordeal was over, although the hair at my temples wasn't growing back. My baby is 4 mo old now and all of a sudden the hair loss started up again and my temples have gotten much worse - as well as my frontal hairline and it is spreading down toward my ears.

I finally decided to see a specialist in NJ that also does restoration. I've heard a lot of good things about him and am finally ready address my hair loss once and for all. I'm angry at myself for waiting so long to really deal with this, but frankly I wanted so badly to believe all the other doctors that it wasn't a big deal or it would stop or grow back. I guess I've been in denial about what is happening to me. I look in the mirror and am so embarressed at the way my hair looks and obsess about it all the time. I hope that I've found the answer - I will post again after my appt.
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Old 01-04-2010, 11:46 AM
therahul19 therahul19 is offline
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Default hairs loss

hi,
Hairs are so soft it has to wash and clean by water do not use any soap or shampo for it...i do it so my hairs become a smooth and soft ...i am very young for old also it will use...just wash yur hairs and dry it not completly then apply yur things such as gel ot oil !!

http://www.tourmalineceramiciron.reviewdomo.com/
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Old 01-06-2010, 02:55 PM
Sereama Sereama is offline
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I have been experiencing the same thing on the top side of my head. Sometimes I get a burning senstaion on my scalp. I notice my hair has gone so thin and I have been to see the specialist. They pulled out strand of hairs and tested it and it came out clear. I am starting to feel depressed just looking in the mirror and seeing my hair. I am going to try and see another specialist and see what happens.....
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Old 01-07-2010, 07:45 PM
MiaFlores MiaFlores is offline
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Originally Posted by 31andlosingit View Post
Shortly after that I got pregnant and I believed that perhaps my hair loss would stop because my pregnancy might help repair whatever I did to my hormones from BCP. And for a while, my hair loss really did decrease and I finally felt like this ordeal was over, although the hair at my temples wasn't growing back. My baby is 4 mo old now and all of a sudden the hair loss started up again....
Ugh...unfortunately at this point, it might be hard to tell how much of what you're going through is due to your pre-existing hairloss issue, and what is just normal post-pregnancy shed that might grow back. Most people shed less if at all during pregnancy (as you experienced) b/c of the high levels of estrogen, and most women--including those who don't normally have a hairloss problem--endure a disturbing amount of hairloss starting a a few weeks to a few months after the baby is born due to the drop in estrogen. Therefore, some docs are going to tell you everyone goes through and not to worry about it because it will grow back...and they're partially right...but they probably aren't entirely right. I'm sorry you're going through this....
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Old 01-08-2010, 09:45 PM
kso kso is offline
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Hi all,
For some reason, I wasn't informed through my email account that people were responding to this thread. Plus, I've been trying to stay avoid looking up hairloss stuff because I was getting nothing else done...

I wish I had better news, but my hair loss continues to worsen. I lose about 100 or so hairs a day (yes, I know this is "normal," but it is not normal for ME). And, the sides/temples are by far the worst areas.

I'm keeping up with accupuncture once per week, still taking synthroid, herbs, iron, etc...the same stuff as everyone else. I also gave up coffee, which was not as hard as I thought it would be. I stopped Rogaine because I started growing hair on my face, which was never my intention! And, I never liked the concept to begin with. I only started it because the "famous" derm I saw recommended it, but I think there has to be a conflict of interest there (all of her research involved Rogaine). Anyway, I wouldn't recommend it, although I hear it works for some people.

I can't help but think that there has to be some environmental component to all of this hairloss. I know personally two other young women losing their hair, and even met another one grocery shopping yesterday after she noticed I was buying hair vitamins. Like so many of you, my hairloss does not fit the clinical picture of AGA, TE, etc...so WHAT is it?
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