Panicking, Please tell me it will be okay.

Discussion in 'You've Got My Support' started by ImaPepper, Jul 1, 2014.

  1. ImaPepper

    ImaPepper New Member

    So I finally bit the bullet and started Rogaine 3 weeks ago, I was sitting with my grandmother who has extremely thin hair and I realized that would be my fate if I didn't start to do something soon. Three days ago the dread shed started and it's worse than it has ever been. Also I just went through one about 2 months ago and lost a lot of hair and now I am afraid I am going to be completely bald soon. My hair is thin mostly in my bangs and hairline so there is no hiding it. I'm really freaking out right now. I know I just need to wait it out but I'm about to cry, I'm going to be bald. I'm 34, I can't be bald. How long is this going to last and how bad is it going to get?
    Ponygirl likes this.
  2. cipota100

    cipota100 New Member

    Hello ImaPepper. I am so sorry that you are going through this, and I think I know how you feel although I am a little older. I'm going through something very similar at 47. It does feel really alarming and depressing and I have worse days than others in being able to cope and being able to sustain hope. I don't know whether you have had yourself tested for the various possible culprits in terms of thyroid, iron levels, etc. That is very important. I also believe that having at least one confidant to whom you can express how you are feeling is crucial. and psychological counselling is something else to consider. In terms of sustaining hope, well there are women who lose hair and gain it back. And there are those who develop coping mechanisms that rely on the use of cosmetic solutions. Recently when I was telling a friend about this problem, she surprised the hell out of me with the revelation that she had alopecia universalis since she was 3 years old, and has no hair whatsoever. She has used a wig all these years and she is about my age. It has not stopped her from doing anything at all. This has been an additional source of hope for me. I think we need to fight this condition and that we also need to prevent it from ruining our lives.
    Annie78, Blouses and Ponygirl like this.
  3. ImaPepper

    ImaPepper New Member

    I do have Hypothyroidism and PCOS along with the women in my family having extremely thin hair. My grandmother and great grandmother you can see their entire scalp. So I feel like I am just cursed and screwed. My shed is crazy but I hope it stops soon. I have also been on Spiro for a while now to help stop the hair from growing in places I DON"T want it. I can't grow it where I want it and pluck tons where I don't. It's ridiculous. When my hair is wet it's really obvious, and I am really short, 5 foot even, so everyone is looking down at the top of my head and it makes me super insecure about it. The women's rogaine had been giving my hair lots of lift at the root and body {my hair is usually very flat and limp} so it has been hiding the shed a little because my hair looks fuller. It's just scary to have large hairballs in the shower and comb fulls of hair when your hair is already thin. Also it's my hairline and bang area so I can't really hide it. I just hope it stops soon before I am just bald. If it get's to bad I will just shave it and rock a bald head. I'm kind of lucky in the fact that my "style" would make me shaving my head not really a big shock to anyone and I could have a shaved head with my job. I just really don't want to get to that place, it's way to hot in New Orleans to wear a wig. Thanks for the support!
    Ponygirl likes this.
  4. qudsia

    qudsia New Member

    Can anyone offer my any suggestions on how to stop the shedding and regrow the hair that I've lost thus far? Is there some kind of specialist I can see? What is wrong with me? Ugh, I'm crying as I type this. Help!
    _____________
    sara
  5. Ponygirl

    Ponygirl Member

    ImaPepper, I'm from New Orleans, too! (don't live there now...but still very close). Hang in there.
    brooke1975 likes this.
  6. Ponygirl

    Ponygirl Member

    I'm still hoping my shed is completely low-iron/ferritin related. Jury still out...
  7. Rusty1982

    Rusty1982 New Member

    I am in the same situation as all of you. Hair loss has taken over my life and it is getting worse very fast. I have been using toppik to hide it but I'm always worried people will notice. When I sweat it drips... Just awful
    Blouses likes this.
  8. Dominique

    Dominique Member

    I started the 5% Rogaine foam over a year ago and I started shedding like crazy ( just like the Rogaine directions mentioned could happen) so after a month of shedding I had my doctor put me on an oral dht blocker. After 2 months the shed stopped and the hair I still had started growing really fast. This lasted for another 3 months until I added a home hair laser to my routine, then I was shedding again. speed up to now ---I shed anywhere from 10 to 50 hairs each day now and that is great! The trouble is........ my hair remains very thin on the crown and bang (almost but not quite see thru to the scalp) and I had hoped for more of an improvement by now. But at least I have stopped the worst of the shed and my hair has more life now, shiny and with more lift at the roots so that is a plus. I guess it might have gotten a lot worse if I had not started these hair loss aids- I also take hair vitamins along with using a hair filler called Infinity PR on my crown and bang area. My hair is baby fine and the other products like Toppik and Caboki were not small enough fibers to be believable in my hair. But Infinity PR is so very fine it covers my hair loss completely! So have hope and just keep researching what works best for you and your hair loss issues and you may grow back some of your lost hair. But if you do not, there are still many things out there that can help you to look great even though you have a lot less hair than before .
  9. Rusty1982

    Rusty1982 New Member

    I have never heard of infinity pr.. Did you try toppik? Can you have a part with infinity? Has anyone noticed it in your hair?
  10. Metalmom

    Metalmom Member

    I've been using Rogaine a little over a month now and, whether or not it's the cause, the thinning has continued like crazy. I say "thinning" instead of "shedding" because I don't see any hairs anywhere, in drain or brush. Someone suggested it's miniaturizing. Weird thing is, the less hair I have, the longer it takes to style (more like place) it. And P.S., I notice more and more women with less hair.
    Annie78 and Blouses like this.
  11. Annie78

    Annie78 New Member

    How are you doing?
  12. Rusty1982

    Rusty1982 New Member

    The same.. Wish there was a real solution
  13. Annie78

    Annie78 New Member

    I know. It's awful. Someone could make a lot of money if they could find a quick solution to alopecia.
  14. nomorehair77

    nomorehair77 New Member

    It would take several months, but it does create some degree of improvement. We react differently to medications so how others are faring would be different from what others experience. Do you have contingent plans if this don't work out for you than what you expect?
  15. Dominique

    Dominique Member

    Its been a little over 2 years since my last post so I felt I should update any of you who might still be struggling with hair loss. Mine has not improved since that post, but it did decline. I went into almost a year long shed, starting in the spring of last year. It was awful, I found my shed hair everywhere, bathroom sink, shower and bathroom rug as well as around the rest of my house, it was the shed from hell! What hadn't shed was breaking off in large amounts about a inch from my scalp. I was beside myself with worry that I would soon go totally bald! I had been going to a hair loss specialist for most of the last 3 years and she had put me on Aldactone 100 mg twice a day at the initial visit. It had caused a short shed right after I started it, but I think that the fact that I had already been on Proscar 2.5 mg q day for many years, saved me from a worse shed. So I was feeling pretty good about my hair when I wrote that last post in 2015, so good in fact that in the spring of 2016 I stopped the Theradome helmet treatments all together. I chose to simply because it was a chore and I was working a lot of hours and had trouble finding time for it, plus I hadn't seen any dramatic improvement in my hair since I had been using it. Skip to mid summer of 2016......my hair starting shedding big time. I hoped it was only a yearly shed which I had always had for a month or so but No, it went into the fall and then into this past winter too, now it is January and I decided that I had to have changed something in my hair routine to have caused this major decline. My hair lost specialist played the problem down at every visit, even though past photos that she had taken showed that my hair had more volume and basically just looked healthier before this shed started. Finally at my last appt. in Oct 16, she brought up using her final weapon against hair loss, PRP therapy. To those of you unfamiliar with it, I will tell you that I have researched it extensively. I felt that with the large and on going cost of it, along with it being a very painful procedure and not even sure to work for me, that I would only use it as THE VERY LAST RESORT, so I turned it down for now. So skip to Christmas, my shed continued with no slow down and so I started looking for what I had changed or what had gone wrong, that started this horrible downward slide. There was only one change, THE THERADOME LASER. I started back on it 2 weeks ago and MY SHED has slowed down from 75 to 100 hair a day to about 50 to 75 now, yes by then I always kept some daily count of my lost hair. Now that is still way too high for me, 25-35 a day would be my norm but its only been 2 weeks of sessions. So at least now I see some light at the end of the tunnel. The laser was never going to give me MORE hair, which is what they advertised and I desperately wanted, but it had STRENTHENED those frail thin strands that I still had and maybe even thickened each one too. I guess the thing that I want to get across to those of you that feel all is lost is this. You must try everything and just see what works for your special hair loss. There are so very many people out there who have tried but not been helped by laser helmet therapy. I think I might be one of the lucky ones. You see I know now that it will never give me back the hair that I had lost over the years, but hair that at least has thicker strands and creates a vision of more hair, along with being stronger (not breaking off constantly) and looking shiny and healthy too, well that is definitely an improvement to me, and I will settle for that, at least for now. The antidote of this story is, Pay attention to what works for you and don't change or drop any part of it. I will never stop using that dang helmet now but nor will I give up hope that science will find a cure for my hair loss before I am dead or just too old to care!
    Last edited: Jan 19, 2017